Neil Jory

Carer Competency Checklist

COMPETENCY CHECKLIST FOR THE SAFE ADMINISTRATION OF OROMUCOSAL (BUCCAL) MIDAZOLAM ESNA would like to introduce the oromucosal midazolam competency checklist. It is a helpful tool to guide reviewers and their caregivers through the process of understanding a person’s seizures, their emergency protocol, and the importance of safe and practical administration […]

Read More

The Learning Disability Mortality Review 2019

Treatable causes of death accounted for 403 per 100,000 deaths in people with learning disabilities, compared to just 83 per 100,000 deaths in the general population, according to the University of Bristol’s 2019 LeDeR Annual Report. The report, published on 16 July, indicates that the majority of people with learning disabilities […]

Read More

The Channel

Young Epilepsy has launched new digital resource The Channel . As well as a host of broader information, it includes some specific advice on Covid-19 and epilepsy. As we’re sure you’ll be aware, young people with epilepsy are more prone to mental ill health, anxiety and feelings of isolation than […]

Read More

March 26th Purple Day

On this day,people across the globe come together to talk about epilepsy, raise awareness of the condition and raise money to make a difference to the lives of people affected by epilepsy. ​Purple day was created in 2008 by Cassidy Megan, a young girl from Canada, who has epilepsy and […]

Read More

Exploring epilepsy attendance at the emergency department and interventions which may reduce unnecessary attendances: A scoping review

Causes for repeat Emergency Department (ED) attendances for seizures are complex. •We undertook a review of reasons and interventions of seizure related ED attendance. •Findings suggests many factors for attendance are not directly seizure related. •Mental & social well-being & seizure management education influence ED attendance. •Various interventions were identified […]

Read More

PARENTS EVENT For parents of children with epilepsy Bristol Aquarium Anchor Road, Harbourside Bristol, BS1 5DB, 24th January 10am to 2pm

Young Epilepsy are hosting an event in Bristol Topics include: – How schools support students – Parenting advice from an Educational Psychologist and young people themselves – Preparing for consultations with health professionals – Treatments other than medication – including the Ketogenic Diet – Keeping your child safe Parents Event […]

Read More