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Meet the ESNA Executive

General email contact: [email protected]

This email is checked regularly.  If you require an immediate response from a member of the Executive Committee please contact them directly.



Chair

Phil Tittensor

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Personal profile:- Phil is Consultant Nurse for the Epilepsies, based in Wolverhampton.  He is a Registered Nurse for people with Learning Disabilities (RNMH) and holds a Diploma in Nursing (DipN), a Masters Degree in epilepsy (MSc) and is a nurse independent prescriber (NIP). Phil qualified in 1990 and has worked with people who have epilepsy all of his career. He began his first Epilepsy Specialist Nursing post in 2000, and has worked exclusively with people who have epilepsy since then. His clinical work is with adults, but he still retains an interest in learning disabilities & runs a specialist epilepsy and learning disabilities clinic. Fifty percent of Phil’s current role involves research, teaching and service development. He is principal investigator for several studies at present, and has a particular interest in non-epileptic attack disorder (NEAD).

Vice Chair - Resources and Website Coordinator

Caryn Jory

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Personal profile: Caryn trained in London at Westminster Hospital and qualified as a Registered General Nurse and a Registered Sick Children’s Nurse.  She became a Queen's Nurse in 2018.  She has worked in paediatrics in London and Manchester.  She specialised in metabolic medicine at Great Ormond Street Hospital.   For the past 15 years Caryn has specialised in adults with learning disabilities and is currently an Epilepsy Specialist Nurse working in the community in Cornwall.  Caryn has published a number of articles in peer reviewed journals relating to research into various facets of epilepsy care.  She is currently on the committee of SWENG.

Treasurer and Conference Coordinator

Carrie Burke

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Personal profile:- Carrie qualified as a learning disability nurse in 1998 and managed community homes for people with learning disabilities. She completed her Diploma in Epilepsy and carried out the epilepsy training for all the staff across the service. In 2008 she took up the first GP based Sapphire Nurse post, set up the Epilepsy Service across the GP practices in Pendle, Lancashire and commenced independent prescribing course in 2010. In 2010 she became the Epilepsy Specialist Nurse at Wrightington, Wigan and Leigh NHS Foundation Trust. The post is funded by Salford Royal NHS Foundation Trust so as well as doing secondary care work within Wigan, she also works with the Tertiary Epilepsy Team at Salford and carry out a monthly VNS clinic.

Membership secretary

Sarah Tittensor

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Personal profile:-Sarah is a learning disabilities nurse who trained in Norfolk and has a diploma in epilepsy from Leeds Met.  She worked in residential care for 13 years supporting adults with very complex health issues including refractory epilepsy and was the epilepsy link nurse for West Norfolk. Shenow works in the private sector managing a residential home for adults with multiple disabilities in the West Midlands.Personal profile:-Sarah is a learning disabilities nurse who trained in Norfolk and has a diploma in epilepsy from Leeds Met.  She worked in residential care for 13 years supporting adults with very complex health issues including refractory epilepsy and was the epilepsy link nurse for West Norfolk. Shenow works in the private sector managing a residential home for adults with multiple disabilities in the West Midlands.

Secretary

Debbie Coker

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Paediatric Lead & Charities and Alliance Link

Nicola Heenan

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Conference Coordinator & Regional Groups Link

Catherine Doherty

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Sally-Ann Remnant

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Sally- Ann is a Clinical nurse specialist working in Brighton area 3 days per week and also  for herself at Epilepsy explained.co.uk.

She is a Learning disability nurse who specialised in Epilepsy care in 1993 at Surrey University. Sally has worked with in Surrey community and secondary care. She  became Advanced nurse practitioner for epilepsy care at Guys at St Thomas’ Hospital in London until 2016 . Her experience includes the role of Matron/co-ordinator of health for a  residential epilepsy service, Nurse specialist and Nurse consultant supporting people with epilepsy. These include adults with and without Learning disabilities, teenage Transition, Women and pregnancy and clinical training.

Sally has a degree in Epilepsy care, is a nurse prescriber and has a MSc in Epileptology from Kings college university; for which she received recognition from Kings and ILAE for her research into Constipation and its relationship with seizure frequency.

Sally is inspired to work as our international ambassador to encourage access to ESNA support and education to other nurses and associates from across the world.

Paediatric Liaison

Kathryn Coleman

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Kathryn is a Paediatric Epilepsy Nurse Specialist, based in North-West London. She is a Registered Nurse (Child), holds a post graduate diploma in epilepsy care, and is a non-medical prescriber (NMP).


Kathryn qualified in 2000 and has worked in a paediatric ward and Paediatric A&E before transferring to a position as a Special Needs School Nurse overseeing the care of children with profound and multiple learning difficulties including epilepsy. 

She took up her first Epilepsy Nurse Specialist role in 2018 setting up the service for a Community Paediatric department, before moving back into an acute general hospital in 2020 to again set up a new service.

Paediatric Liaison

Laurie Bibby

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Epilepsy Nurse Specialist and VNS Lead Nurse Alder Hey Children’s Hospital