Weekly Round-up 7th June 2019
**SAVE THE DATE**
Hello Everyone,
It is that time of year again, no not to be thinking about your holiday, but the bi-annual ESNA Non-Medical Prescribing Day.
Save the date: Friday 15th November 2019
All day event (Exact start time TBC)
Venue: Hilton Liverpool City Centre
We have a fantastic and informative day scheduled including some eminent speakers already secured Tony Marson and Professor Gus Baker.
The sessions will include a patient focused session, The lesser spotted AED and when to prescribe?, Everolimus and Tuberous Sclerosis, SANAD 2., NMP training programme and changes to the Practice Standards.
Cost of the day: ESNA Members £30.00
Non-ESNA Members-£70.00 - (this will secure 1 years membership to ESNA and all of the
benefits of ESNA including members only section within the
Website. On-line subscription to Epilepsia for members use,
discounted conference fees)
To book a place at the meeting please contact Carrie Burke on carrie.a.burke@wwl.nhs.uk.
Payment will need to be made at least 6 weeks prior to the meeting.
Should you require overnight accommodation this would have to be booked directly with the hotel and advise you are attending the conference.
Catherine C Doherty
CNS Epilepsy,
Long Term Conditions Care Group
Tel: 01922 721172 extn 6048
Medical Secretary Tel: 01922 721172 extn 6440
Fax: 01922 656449
Email: catherine.doherty@walsallhealthcare.nhs.uk
Walsall Healthcare NHS Trust, Manor Hospital, Moat Road, Walsall, WS2 9PS
*******************
The New Website – GDPR
Dear All
ESNA needs to comply with the requirements of GDPR. We are about to launch a new website and we need permission to continue to store personal details. Details we currently have are name, job title/speciality and role description/contact details/main base and date joined. We will hold membership details in a secure GDPR compliant database on our new website. We will email members individually asking them to check their information and agree to ESNA holding it.
**We will keep this information safe and only use it for the purpose for which it is intended**
One service that we would like to add is the ability for members to search for other members on the database and contact them if required. This will be made clear to everyone in the email we send out.
Caryn
Caryn Jory
Epilepsy Specialist Nurse
Queen's Nurse
Cornwall Partnership NHS Foundation Trust
Adult Learning Disability Service
West Wing
Carew House
Beacon Technology Park
Dunmere Road
Bodmin
PL31 2QE
*******************
INFORMATION NETWORK
Dear All
FYI
Kind regards
Helen
| View this email online in your browserUnsubscribe from ESN newsletter Epilepsy Specialist Nurse NewsletterHelloWelcome to this issue of the epilepsy nurses' newsletter. Don't forget that if you have any news you would like to add to the newsletter, please get in touch.In this issue: Epilepsy Action updatesDrug updatesESNA eventNEAD requestJob opportunitiesBirmingham family eventIn other news Epilepsy Action’s contraception information updatedOur contraception and epilepsy information is now available online. It has been updated, including the addition of a new page for sodium valproate and using a long-acting reversible contraceptive (LARC). Epilepsy Action has new travel advice for people with epilepsyEpilepsy Action has new travel advice for people with epilepsy available on the website. Epilepsy Action’s new learning site design has gone liveThe learning site has had a refresh and is now live. We wanted to improve the user experience of registering for an account and enrolling on courses. Visit the new look site. DrugwatchGabitril (tiagabine) – 15mg tablets out of stock in the UK15mg Gabitril tablets are still out of stock, and the 5mg tablets are now out of stock as well. Teva says they expect to have both strengths back in stock sometime between July and September 2019. The 10mg tablets are in stock. For up to date information on anti-epileptic drugs visit Epilepsy Action’s Drugwatch page. ESNA bi-annual Non-Medical Prescribing DayHello Everyone,It is that time of year again, no not to be thinking about your holiday, but the bi-annual ESNA Non-Medical Prescribing Day.Save the date: Friday 15 November, all day event (exact start time TBC) Venue: Hilton Liverpool City CentreWe have a fantastic and informative day scheduled including some eminent speakers already secured Tony Marson and Professor Gus Baker.The sessions will include a patient focused session, the lesser spotted AED and when to prescribe? Everolimus and Tuberous Sclerosis, SANAD 2., NMP training programme and changes to the Practice Standards.Cost of the day:ESNA Members £30.00Non-ESNA Members £70.00 - (this will secure one years membership to ESNA and all of the benefits of ESNA including members only section within the Website. On-line subscription to Epilepsia for members use, discounted conference fees)To book a place at the meeting please contact Carrie Burke on carrie.a.burke@wwl.nhs.uk.Payment will need to be made at least 6 weeks prior to the meeting.Should you require overnight accommodation this would have to be booked directly with the hotel and advise you are attending the conference.Catherine C Doherty CNS Epilepsy Tel: 01922 721172 extn 6048 Email: catherine.doherty@walsallhealthcare.nhs.uk NEAD Request – Can anyone help?Do any other nurses have any pathways they use for people with NEAD; are there any MDT who support this group of individuals? How does it work in principle?Unfortunately in my area these needs are not being met and psychology department are looking at how we can improve.Regards, Shelley Shelley Anderton sanderton@nhs.net Epilepsy Specialist Nurse Lead East Suffolk and North Essex NHS Foundation Trust Job description for a Band 5 Support Nurse for Epilepsy & Band 6 Epilepsy Nurse postWe are wanting to know if anyone has a job description for a Band 5 Support Nurse for Epilepsy that they are happy to share?We are also looking for anyone interested in a Band 6 Epilepsy Nurse post, we will be looking for anyone with an interest either with the epilepsy qualification or with an interest in taking the course. Based in Breightmet Bolton within a very active and motivated neuro rehab team, working with 4 neurologists, an Epilepsy specialist nurse and support nurse covering a 1500+ patient case load.I will be happy to see candidates to show around the service before interview if requested, they can email me at janet.rigby@boltonft.nhs.uk.Many thanks Janet Epilepsy specialist Nurse janet.rigby@boltonft.nhs.uk 01204 462766 Birmingham family football and netball eventJoin other families living with epilepsy to play a range of sports or craft activities. There will be options including football, netball, badminton, tennis or a variety of craft activities.Leon Legge who plays professionally for Port Vale will be providing football tips and talking about his own epilepsy to inspire the next generation.Play Football 20 Great King Street North Birmingham B19 2LF In other news... Neurobehavioral problems in children with early-onset epilepsy: A population-based studyNeurobehavioral problems (i.e. cognitive impairment/behaviour problems) are a major challenge in childhood epilepsy. Yet there is limited data in children with early-onset epilepsy (CWEOE; onset ≤ 4 years), the period in which the incidence of childhood epilepsy is highest. This study aimed to determine the prevalence, spectrum, and risk factors for neurobehavioral problems CWEOE. Read the article And finally...Please send any questions or content for the next issue to me, Peri, or my colleague Mary. This is your newsletter, and we look forward to sharing your news.Please forward the newsletter to your colleagues - they can subscribe today by emailing me or Mary with their name, hospital, clinic or surgery name, and their email address. Thank you Peri and Mary Peri poconnor@epilepsy.org.uk Mary mspencer@epilepsy.org.uk Healthcare projects coordinators, Epilepsy Action 0113 210 8779 or 8795If you no longer wish to receive the newsletter please unsubscribe here helen.hodgson@nbt.nhs.ukUnsubscribe from all emails from Epilepsy Action and its trading company | Forward to a friend"We exist to improve the lives of everyone affected by epilepsy"Epilepsy Action is the working name of British Epilepsy Association, a registered charity (No. 234343) and a company limited by guarantee (No. 797997) in EnglandRegistered Office: New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY, United KingdomMain office: +44 (0)113 210 8800 epilepsy@epilepsy.org.uk Helpline UK 0808 800 5050 helpline@epilepsy.org.ukepilepsy action website | donate | become a member | privacy policy |
Follow us on:
Facebook: @epilepsy nurses association-ESNA
Twitter: @ESNA_epilepsy
