Integrating care for people with epilepsy and a learning disability - a guide for commissioners and commissioning services
With good seizure control, people's lives both in terms of quality and length of life, can be transformed. It is absolutely right, therefore, that we should expect the highest standrads of investigations, care and treatment for people with the most complex epilepsy irrespective of whether they have a learning disability and/or autism.
This guidance should be used by commissioners of health care to audit and assure themselves that the services they are commissioning meet the needs of their population and that there is the correct aspiration to improve and provide access to 5* services when needed. It should be used by clinicians in both primary and secondary care to recognise service gaps and build more collaborative models of working. Families and carers should also look at the services they receive and see if they measure up to what they need using some of the ideas provided here.